87 replies to this topic

[Viviana224]

I knew that would be the case and when I spoke to them they specifically said they could do as little or as much as was needed..

[fishinghat]

That sounds good. Considering you just dropped the traz in half I would give yourself a week or 2 before making a drop on Cymbalta and seeing how you are then.

[Viviana224]

I figured that would be the case. When I spoke to the pharmacy they assured me that they could make the dose as high or as low as needed. Either way, I will have 20mg capsule left, and if I have to bead count at the end that's perfectly fine.. How slow do you recommend coming off Traz from 100mg? Also, I am speaking with my dr tomorrow, I hope she will be on board with all this. I only have 4 more days of 15mg left. How long should I stay here, and when I do go down what should it be to? I want to have info so my dr can prescribe what I need for the next while.. Thanks!

[Viviana224]

Sorry about that, I just emailed fishinghat thinking my posts weren't posting. Turns out it went to page 2, haha! I'm doing this from my phone and it's so small you can't see that there's a place to move forward..lol
If I do well with 15mg in the next week how much time do you recommend for me to come down. Like I stated above I want to give my dr kind of a heads up if I can.
Maybe you could provide a weaning schedule if that's not too much to ask.
Sorry for bombarding you with question..
Thanks so much!!

[invalidusername]

No problem!! The forum is a bit antiquated, but it may be getting updated soon which means there will be a version which works better on iPhones, which I understand is the issue at present.

 

Regarding the dose, most get as far as 10mg doing jumps of 5 or 10mg, but from that point of 10mg, it is highly recommended that you go to bead counting. So if you are stable after a couple of weeks on 15mg, then you will be ok to go for 10mg, and then to stablise on that. But I would wait these two weeks at least as you have just dropped the traz by half...

 

From there it will be a case of dropping 1mg at a time and seeing how you go. You may find that when you get below 5mg that it gets a bit tougher and you might need to as for .5 dose drops which will be more equivalent to bead drops.

[Viviana224]

Great thanks so much! From the 10mg point you say it's usually 1mg drop or less from that point right?

[invalidusername]

Spot on

 

Great thanks so much! From the 10mg point you say it's usually 1mg drop or less from that point right?

[Viviana224]

Thanks again!

[invalidusername]

Vivana224 wrote:

 

"Well actually my pdoc suggested 2 weeks ago to cut down on the traz. I went to 50mg from 100mg, I had night sweats and had to add 50mg of hydroxyzine to be able to sleep. About 3 weeks ago every time I took my 100mg of traz for sleep I started feeling weird, amped, my brain felt odd. I can't really explain it. I started thinking about seratonin syndrome. Told my pdoc and she said I was taking enough meds to have it, I wonder though. I feel better on the 50mg. My plan was to just stay at 50mg for a while and get started on ridding myself of this poison! I was reading some more stories on here and it's scary to see that some people have sustained permanent damage or at least long term damage..

 

Sorry if I confused you with the traz situation. I was planning on just sticking with the traz but when I tried to up the dose last week, I again had that odd feeling mentioned so I went back down to 50mg.

To be honest, it's hard to know what to do sometimes. I've wanted be med free from the beginning of all this 2 years ago and here I still am..:/ The one good thing I've learned is that I may not have peripheral neuropathy at all, that it may all be med related. I guess only time will tell"

 

Hat wrote:

 

"I got you. I would agree, just stay withy the 50 mg of traz until the Cymbalta is a done deal."

 

Vivana224 wrote:

 

"Thanks again! I will keep you updated.."

[invalidusername]

Vivana - we had a glitch on the forum today whereby the posts during the afternoon got lost - but I had a record of what you wrote, so have reinstated, but I didn't get a notification of my response, so I do not have it....

 

Hopefully should be fine tomorrow

[fishinghat]

Whew, thanks IUN.

[Viviana224]

Thanks for letting me know!! I had an appt with my pdoc and she is on board with my slow weaning process.. I got scripts for 3 more weeks of 15mg caps, 12.5mg caps and I already have the 10mg caps. I think I'm good to go for a while. As you advised, I will stay on the 15mg for 2 more weeks and see where I'm at then. Feeling a little weird tonight, I'm wondering if the dosing down of the traz and cymbalta are hitting me.. :/

[Viviana224]

I was wondering if one of you could recommend a good omega 3 that I could take?

[invalidusername]

Great news for getting the caps - that is one less concern. And yes, hold for a while to see how you are with the recent changes.

 

I have nutravita omega, but they are not available in the US. A quick look on amazon shows these;

 

https://www.amazon.c...,aps,238&sr=8-1

 

They look really good, but yes, $20 for a months supple can be a bit much, but the ingredients are exactly what you need...

[Viviana224]

Thanks so much, I will look into this! I'm very grateful for this site. When I went through this 2 years ago I had no idea what the heck was going on. No support from drs (imagine that!) and not much understanding from friends and family except for my mom who's amazing! The scary thing is that I know what I'm in for, that can be advantageous now that I have more of an understanding and help but frightening at the same time! I'm a christian and as Christians we are called to suffer and rejoice in our sufferings. Somehow I figured that the suffering would be softened or not as difficult. This has really tested my faith which is what suffering is supposed to do. Not easy as you well know..

[Viviana224]

I recall IUN mentioning cbd for sleep. Would this be something I can use while on cymbalta and gabapentin? I don't know much about it, my mother in law recently started taking it for fibromyalgia and she has had great success with it. I know there can still be a small amount of THC in it which concerns me considering I'm trying to get off of mind altering drugs. Also, it's so new, have there been studies of how this affects patients in the long haul?

[invalidusername]

You are right about the suffering - it can test our faith for sure. I myself am a spiritualist and understand it that we are here for reasons decided by ourselves prior to our lifetime here. God and our various guides the Other Side are there for us, but ultimately we have free will and thus can alter our destiny. But God will never turn His back on you regardless. Try as best you can to keep your mind open to Him and His way forward for you.

 

CBD is perfectly OK to use whilst on these meds. The level of THC is so minimal, the effects of this part of the plant are non-existent. There is a chance that there are none whatsoever, but the companies have to put this in to cover themselves, but it is a trace (immeasurable) nonetheless.

 

Long-term is not a consideration if the CBD is carefully sourced. It is those which aren't responsibly manufactured that can cause some problems down the line - but even then, the chances are small and irreversible in a majority of cases.

[Viviana224]

Thanks so much, I just got off the phone with my compound pharmacy and they compound their own so I'm excited about that! would this be something to start now or later on down the road?

[fishinghat]

Doing the compound pharmacy now might be easier on you to deal with.

[Viviana224]

Great! Thank you!

[Viviana224]

Just to be clear, to start CBD oil now would be best? Since we've been talking about the compound pharmacy for my meds as well, I wanted to make sure, haha..

[invalidusername]

Just to be clear, to start CBD oil now would be best? Since we've been talking about the compound pharmacy for my meds as well, I wanted to make sure, haha..

 

Yes. It will start to ease the withdrawal at any point you start taking it, so now would be good rather than later in case it doesn't work then we still have time to look at alternatives.

[Viviana224]

Great thanks again!

[Viviana224]

I Was shocked to findout that my sister had been on Cymbalta several years ago for fibromyalgia, she was on it for a full year and suffered no withdrawals when she came off of it. A few years later she was feeling some depression and was put on Effexor. She wanted to come off of that and only suffered minor withdrawals, nausea and fatigue for 3 weeks. It's nice to hear a success story, especially coming from my own sister. I'm praying mine will be as successful but I've had a lot of meds in and out so who knows. It's hopeful to know that it is possible. If not for me then for others... ❤❤

[fishinghat]

My sister in law was on Cymbalta twice and cold turkey both times with no withdrawal. You never know.

[Viviana224]

Wow, that's crazy! Ok, so today I'm not feeling so hot, I'm wondering if the dosing down on the traz and Cymbalta was a bad idea... I'm getting some good CBD oil from my compound pharmacy today. I'm wondering if I should up my traz to 100mg again? Should I wait to see if the CBD does anything? Also, I'm now on a FB private page who were saying that a 10% decrease should be followed at any and starting point. Would you agree? Should I come down slower for 12.5 for my next drop?

[fishinghat]

My  view point is the slower you drop the better. If at any point you are suffering a lot stop and hold at your current dose until you feel better. Having said that there are some people who have no choice to wean faster due to a lack of medication or serious side effects.

 

I am not a protonate of lower and raising doses when ever things get good or bad. IUN went through a lot of ups and downs and because of it he had a horrible time stabilizing. That is a very common story here. You are naturally going to have significant ups and downs and this may just be part of that. Only time will tell.

[Viviana224]

So it would be wise just to stay put here until I stabilize?

[invalidusername]

Yes. You have the alternative to go back up on the traz, but if you can face it as you are, all the better.

 

If you do feel you need to go back up, don't go all the way back to 100 as your body has already accustomed to a lower dose, so perhaps 75.

 

See how you go...

[Viviana224]

Thank you so much!!.