2784 replies to this topic

[Axlejames]

But acquired would mean It could go away right

[Axlejames]

I've been off the medication they said was causing it for almost 2 months

[invalidusername]

Secondly - this NDE stuff. Science are always out to disprove, but listen to what 'hat is saying. These people have found just ONE symptom of NDE that is shown by use of this drug. Big whoop. So what drugs don't give similar things like this?!

 

NDE, in my opinion, will never be proven to any means of hard science.

[Axlejames]

Thank you iun again as I've stated before you all are so invaluable to me

[Axlejames]

I literally am only able to go through this without going into a detox or facility because of all of you here I just wish I knew how long this will last I was actually perking up until the dr called I feel like I need to find a new dr

[invalidusername]

Acquired does go away, but 2 months is still plenty of time to still have the effects in your system.

 

"Congenital long QT syndrome can be treated, but it can't be "cured" and won't go away on its own. Acquired long QT syndrome usually stops if the cause (like certain medicines) goes away."

 

That's the difference. Congenital (meaning from birth, or early age) is something you would be stuck with, but if it has been "acquired" following birth, it will in most cases, go away.

[invalidusername]

I am also really feeling it today. My anxiety is a little better, but my depression just wont leave me alone. It has been so many days now. I'm tired of living like this. I am beginning to doubt the withdrawal, but I know it is to blame. But you get to the point that you just don't care what is causing it, you just want it to go away!!!!

[Axlejames]

Ok that makes sense I need to find a way to relax my wife situation currently is a big stressors for me throw in a new position at my company and all the withdrawl stuff all of you with similar experiences how do you get through and I realize just now I'm maximizing all of your time I am sorry for that I truly appreciate you all

[Axlejames]

Iun that's how I feel just want it to be done this may or may not help but know when i open up my webpage to this and see you respond and fish and Gail and all the others it brings me one step closer to feeling just a little better your helping me a total stranger God bless you for that

[fishinghat]

I've been off the medication they said was causing it for almost 2 months

Could take up to two years to recover after stopping the med but usually less.

[invalidusername]

Axle - I am here because I want to be here talking to you. I am grateful to know there are other people out there. Just as Gail was. Just as 'hat was. They were both in our situation not so long ago, and we are all here because we know how difficult it is to go it alone. 

 

I for one am not just going to disappear when my withdrawal is done. I want to help as well as be helped. And you are, honestly, just by writing your thoughts, are helping others. People like to see that others are going thru what they are. Regardless of what your head is telling you, don't stop posting, ok?

 

Spirituality is going to be tested. But remember, God works in ways we don't see. Right now, I am questioning a bit, but where did the medical direction of hat come from, where did the lovely words from Gail come from, the support from TryinginFL? They suddenly appeared when I needed them most.

 

[edit] Nearly forgot Pobes from that list!! Pobes has also been a dear supporter to me of late...

[Axlejames]

Amen thank you for your kind words I'm hoping fish will weigh in on the whole qtc thing and dr thing my wife told me I should just take my adderall and see what happens tbh I'm scared it will hurt me at this point idk

[Axlejames]

Is there a way to shorten that 2 years fish

[Axlejames]

I dont plan to leave either

[invalidusername]

I am sure fish will agree.

 

But I can tell you that I have read up on it all as a result of a very close friend of mine recently finding out that he had long-qt. His was since birth they have deduced - he has never had an EKG in his 45-year long life! But he doesn't exercise and has had a 9-5 desk job for as long as I can remember.

 

I am damn sure that if you have done a tour of Iraq and all the associated tests and exercises, something that sinister would have certainly shown up by now. 

 

Glad you have joined the family. I am sure you will be a huge help as we all go forward. You can leave all the theoretical and science stuff to 'hat and myself as you will be a good one for talking of experiences, as we have all seen what you have been through to get here...

[Axlejames]

I am trying to force happiness out of myself kind of as an exercise of maybe by forcing it I'll just become happy is this bad

[invalidusername]

Can you explain this... not quite getting you here?

[Axlejames]

Is it bad to try and force myself to be happy

[invalidusername]

Sometimes we don't know that we will enjoy something until we try. Our brains have forgotten how to release happy chemicals, so most often is the case that we simply don't do anything because we assume that nothing will make us happy.

[invalidusername]

Just going back to the QT issue. Looking on the details of my meds and those of the mrs, and I found the following... (see photo).

 

You can officially stop worrying mate!! It's there in black and white in two different sets of meds...

 

 

 20181103_005934.jpg   85.83KB   0 downloads

[Axlejames]

So if I'm off the meds it should go back to a normal range at some point in the mean time should I be worried

[fishinghat]

No way to shorten the 2 years. Nerves heal very slowly.

No worries on the QT issue. Forget it.

The worse thing you can do is try and force yourself to be anything right now. You are putting pressure on your brain and just increasing your stress. As I have said before, the most effective thing is to take it easy physically and mentally. Keep yourself distracted. Focus on things you enjoy, hobbies, watch your favorite shows, etc. Stay away from serious issues. They will make you worse. This is not just from me. I have read ALL 67,300+ posts on this site and taken notes. This is what works. You must be kind to yourself and easy on yourself or it will make things worse.

[fishinghat]

So if I'm off the meds it should go back to a normal range at some point in the mean time should I be worried

Probably not. Just leave it in the hands of the drs now. Let them do the worrying for you,

[gail]

Good morning guys,

I had a lot to catch up, sleeping since 4pm yesterday. All that for my beauty rest!

So Axle, what are those two meds you're taking about for that QT.

And have you got the go for Adderall, nothing can be worse then now, we agree?

Where are you at with Cymbalta! I'm old, I forget!

You had a good revelation yesterday about when you were in Irak, you feared nothing. You will come back to that, maybe at a lower level. And all those tests before going to combat show that you were quite well prepared physically and psychologically.

Along the way, something broke, with the help of meds and with the PTSD from war. I know no one who comes back the same way they were before. It way be 12 years back, it's there.

You are in my heart and in my thoughts. Let's hope for a little light for you today.

[Axlejames]

Thank you fish very insightful I take melatonin every once in awhile 5mg I took some last night and just seems like I'm still not getting enough sleep anything I can do to help this seems like I'm in the phase of like you saud trying to push how will I know when I'm better question on the qt thing tho woikdn I faint or have some kind of sign before something happened like my heart stops or changes rhythm

[fishinghat]

AJ - I would suggest that you read the document "How to sleep better" in the Summary of Cymbalta Withdrawal thread. It contains a lot of good tips to getting a good nights sleep.

 

The first symptom would probably be having PVCs. This feels like a skipped beat. It is not dangerous either. Many people are naturally given to this condition and have it their entire life with no difficulties. Just listen to the dr and consider having an ekg done every year until this passes.

[Axlejames]

No go on the adderall it's a stimulant and they are worried it will make qt worse does duloxetine elongate qt I'm on 30mg duloxetine and 200mg lamotragine right now I'm taking 2000mg fish oil fish thinks and I hope that he is right that the elongated qt is from the adderall and celexa I was on for 8 years and it may take more than a few months for it to correct itself I am fearful today cause I heard many times people just dying suddenly out of no where I dont want that to happen to me hopefully there would be some kind of warning idk anyways I'm trying to do what fish said take it easy and relax lots of love

[Axlejames]

Fish I was on a halter monitor for 2 days about a month and a half ago if I had PVC would that have picked up on it the dr said that test came back normal too

[fishinghat]

The halter monitor would have picked up PVCs and any flareups in the QT. That is very reassuring.

[Axlejames]

Yeah interesting enough to the person who prescribes my mental health meds isn't a psychiatrist she's a nurse practitioner should I seek out an actual dr at this point like I said all she would tell me is it was higher but the cardiologist hadn't looked at the results yet she was hesitant about putting me back on my adderall anyways is it possible she did this to reinforce that decision I know this is a lot of questions but just want to know some advice