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Numbness, Tingling And Burning In Feet And Legs & Feeling Too Hot Or Cold


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#1 LS1978

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Posted 03 July 2017 - 12:52 PM

My lower legs and feet are numb and tingling some of the time, and prickly and burning at other times.  There aren't any times when they feel normal anymore; it's always either numb and tingling or burning and prickly.

 

I've also noticed that I can feel too hot or too cold, and it doesn't seem to be related to what the thermostat says (not normal for me).  

 

When my feet feel cold or normal temp, they are numb and tingly.  When they are warm, they are prickly and burning.  And my calves and ankles have a crampy feeling.

 

I stopped the Cymbalta completely a few weeks ago (not sure what date), after a taper that started April 10th or 11th.  (I was on it 10+ years.)

 

This weirdness with my legs and feet only started about a week ago.

 

Why would I be starting to have this symptom so recently?  Seems like it would've started earlier in the withdrawal process. (?)

 

 

Is anyone else having anything like this, or have you had this previously?  If so, do you remember when it started for you?  I'm starting to worry that this could be a symptom of underlying disease, because it doesn't come and go.  Other withdrawal symptoms I've had have been more intermittent.

 

 

I don't know if I had this when I was on Cymbalta, but Cymbalta kept me from feeling it, or if this is just Cymbalta withdrawal...and I'm scared.  :(

 


#2 fishinghat

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Posted 03 July 2017 - 06:06 PM

Very common symptoms for many. Symptoms usually develop and alter after finishing coming off the drug.For example I had NO symptoms until I got down to 5 beads then things went crazy. I had symptoms for 275 days after coming off. A fun way to spend the greater part of a year. NOT!!


#3 Merete

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Posted 03 July 2017 - 08:21 PM

You are describing exactly how I experience fibromyalgia which is why I was placed on cymbalta a couple of years ago. I have the same sensations/ pain in my hands as well. It has gotten much worse as I taper off (halfway down from 60 mg now), so I really hope it is a transient thing and not the new normal. Good luck!!

#4 LS1978

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Posted 03 July 2017 - 09:10 PM

You are describing exactly how I experience fibromyalgia which is why I was placed on cymbalta a couple of years ago. I have the same sensations/ pain in my hands as well. It has gotten much worse as I taper off (halfway down from 60 mg now), so I really hope it is a transient thing and not the new normal. Good luck!!

 

Yeah...I kind of suspect I may have fibromyalgia.  That's a doctor appointment I never made, because I figured if I was already on Cymbalta for my depression, what would be the point?  They would just up my Cymbalta.

 

I started on 30 mg.  I went up to 60 mg, but couldn't handle the side effects, so I went back down to 30.  I definitely noticed a difference in my body pain (which has been a problem for years), but I figured I could deal with the body pain I was having better than I could deal with the side effects of the 60 mg dose.

 

Are you going to start on another med for the fibromyalgia?  Or maybe there is a treatment other than meds you're considering?  

 

P.S.-- Thank you for weighing in on this. 


#5 LS1978

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Posted 03 July 2017 - 09:18 PM

Very common symptoms for many. Symptoms usually develop and alter after finishing coming off the drug.For example I had NO symptoms until I got down to 5 beads then things went crazy. I had symptoms for 375 days after coming off. A fun way to spend the greater part of a year. NOT!!

 

I really hope this is temporary.  Wish me luck!!

 

 

 

I hope yours is temporary too, Merete.  

 

 

This is not pleasant at all.  I'm not sure what life is going to be like if my feet and legs feel like they're asleep all the time...and my brain.  I can't even describe how much trouble I'm having thinking, remembering, holding conversations, concentrating, etc.  It's alarming.


#6 Merete

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Posted 03 July 2017 - 10:10 PM

I hope these pains are temporary for you LS. If you didn't have those symptoms before tapering maybe they willl go away with time. I find the most difficult thing is going to sleep but an Advil or Aleve is usually enough to take the edge off. It's really really important to get enough rest. Wish you the best.

#7 bronxbomber

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Posted 04 July 2017 - 12:48 AM

Merete, fh recommended melatonin to help me get to sleep, and it's been working very well. If you haven't tried it, perhaps it would help.

#8 Merete

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Posted 04 July 2017 - 09:10 AM

Yes I take melatonin as well, but I find I can only take it periodically. If I take it too often the effect wears off. So I do the Advil (liquid gels for some reason work way better than solid pills) and then top up with melatonin sometimes. My doctor is always trying to push sleeping pills on me but I am really fed up with being dependent on drugs and not knowing what is a side effect and what is really "me". I also should have mentioned, get some arthritis cream, there are various brands that are supposed to relieve joint pain. I rub that on the soles of my feet at it takes the edge off as well. An epsom salt bath (or just foot bath) is either soothing or excruciating, it can send the pain right off the scale but then sometimes it is very nice.
My pain actually started as chest (wall) pain, so I had all kinds of chest/ heart work-up (everything is fine!) and then the hands/ arms started to act up before it moved into my feet/ legs. So if you get similar pains elsewhere, don't panic! But I really really hope this will settle down for both of us. I am staying on 30 mgs for a while just to get things to level off. At least getting out of the brain fog and start to feel like I can think again would be nice.
Sending you healing, gentle hugs!

#9 fishinghat

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Posted 04 July 2017 - 09:50 AM

My psychologist gave this to me and over the last few years I have added a little to it. I hope it may help you all.

How to Sleep Better

Tips for Getting a Good Night’s Sleep

Tip 1: Keep a regular sleep schedule
Getting back in sync with your body’s natural sleep–wake cycle—your circadian rhythm (daily rhythm)—is one of the most important strategies for achieving good sleep. If you keep a regular sleep schedule, going to bed and getting up at the same time each day, you will feel much more refreshed and energized than if you sleep the same number of hours at different times. This holds true even if you alter your sleep schedule by only an hour or two. Consistency is important.
Set a regular bedtime. Go to bed at the same time every night. Try not to break this routine on weekends when it may be tempting to stay up late. No more than 15 minutes earlier or later each day.

Wake up at the same time every day. If you’re getting enough sleep, you should wake up naturally without an alarm. If you need an alarm clock to wake up on time, you may need to set an earlier bedtime. As with your bedtime, try to maintain your regular wake–time even on weekends.

Nap to make up for lost sleep. If you need to make up for a few lost hours, use a daytime nap rather than sleeping late. DO NOT NAP MORE THAN 1 HOUR PER DAY as it may affect your evenings sleep. DO NOT NAP AFTER 5 PM. The best time to nap is early afternoon.

Fight after–dinner drowsiness. If you find yourself getting sleepy way before your bedtime, get off the couch and do something mildly stimulating to avoid falling asleep, such as washing the dishes, calling a friend, or getting clothes ready for the next day. If you give in to the drowsiness, you may will usually wake up later in the night and have trouble getting back to sleep.

Tip 2: Naturally regulate your sleep-wake cycle

Melatonin is your naturally produced hormone that regulates your sleep. Melatonin production is controlled by light exposure. Your brain will secrete more in the evening, as it becomes darker, Conversely, during the day your brain detects increasing light levels and begins producing serotonin, which causes one to wake and be alert.

Spending long days in an office away from natural light, for example, can impact your daytime wakefulness and make your brain sleepy. Then bright lights at night—especially from hours spent in front of the TV or computer screen—can suppress your body’s production of melatonin and make it harder to sleep. However, there are ways for you to naturally regulate your sleep-wake cycle, boost your body’s production of melatonin, and keep your brain on a healthy schedule.

Increase light exposure during the day
Remove your sunglasses in the morning and let light onto your face.
Spend more time outside during daylight. Try to take your work breaks outside in sunlight, exercise outside, or walk your dog during the day instead of at night.
Let as much light into your home/workspace as possible. Keep curtains and blinds open during the day.

Boost melatonin production at night
Turn off your television and computer. Many people use the television to fall asleep or relax at the end of the day. Not only does the light suppress melatonin production, but television can actually stimulate the mind, rather than relaxing it. Try listening to music or audio books instead, or practicing relaxation. If your favorite TV show is on late at night, record it for viewing earlier in the day.
Don’t read from a backlit device at night (such as an iPad). If you use a portable electronic device to read, use an eReader that is not backlit, i.e. one that requires an additional light source such as a bedside lamp.

Change your light bulbs. Avoid bright lights before bed, after 7 PM do not use a light greater than 25 watts. Reduce light exposure by significantly reducing the brightness on your TV or electronic device.

When it’s time to sleep, make sure the room is dark. The darker it is, the better you’ll sleep. Cover electrical displays, use heavy curtains or shades to block light from windows, or try an eye mask to cover your eyes. Most patients with chronic problems blacken their bedrooms entirely. Do not use nightlights if it can be done safely. Block all windows in the bedroom so light can not enter.

Tip 3: Create a relaxing bedtime routine

If you make a consistent effort to relax and unwind before bed, you will sleep easier and more deeply. A peaceful bedtime routine sends a powerful signal to your brain that it’s time to wind down and let go of the day’s stresses.

Keep noise down. If you can’t avoid or eliminate noise from barking dogs, loud neighbors, city traffic, or other people in your household, try masking it with a fan, recordings of soothing sounds, or white noise. You can buy a special sound machine or generate your own white noise by setting your radio between stations. Earplugs may also help. Sound machines can be purchased at local department stores.

Keep your room cool. The temperature of your bedroom also affects sleep. Most people sleep best in a slightly cool room. A bedroom that is too hot or too cold can interfere with quality sleep.

Make sure your bed is comfortable. You should have enough room to stretch and turn comfortably. If you often wake up with a sore back or an aching neck, you may need to invest in a new mattress or a try a different pillow. Experiment with different levels of mattress firmness, foam or egg crate toppers, and pillows that provide more support.


Relaxing bedtime rituals to try;
Read a book or magazine by a soft light
Take a warm bath
Listen to soft music
Do some easy stretches
Wind down with a favorite hobby
Listen to books on tape
Make simple preparations for the next day
DO NOT exercise or do any significant physical activity after 6 PM. Anything considered work (laundry, dishes, etc) must be avoided after 6 PM.

Tip 4: Eat right and get regular exercise

Your daytime eating and exercise habits play a role in how well you sleep. It’s particularly important to watch what you put in your body in the hours leading up to your bedtime.

Stay away from big meals at night. Try to make dinnertime earlier in the evening, and avoid heavy, rich foods within two hours of bed. Fatty foods take a lot of work for your stomach to digest and may keep you up. Also be cautious when it comes to spicy or acidic foods in the evening, as they can cause stomach trouble and heartburn.

Avoid alcohol before bed. Many people think that a nightcap before bed will help them sleep. While it may make you fall asleep faster, alcohol reduces your sleep quality, waking you up later in the night. To avoid this effect, so stay away from alcohol in the hours before bed.

Eliminate caffeine. You might be surprised to know that caffeine can cause sleep problems up to ten to twelve hours after drinking it! No chocolate, most teas, coffee.

Avoid drinking too many liquids in the evening. Drinking lots of water, juice, tea, or other fluids may result in frequent bathroom trips throughout the night. Caffeinated drinks, which act as diuretics, only make things worse.

Quit smoking. Smoking causes sleep troubles in numerous ways. Nicotine is a stimulant, which disrupts sleep. Additionally, smokers actually experience nicotine withdrawal as the night progresses, making it hard to sleep.

Eliminate stimulants. No sugars, salty food or MSG. Sugar is a stimulant which can increase blood pressure and pulse. It can take significant time to process this material and slow down your metabolism. Salts like table salt and MSG provide sodium which is used by the body to help carry electrical system in our bodies. This can also increase heart rates and metabolism for several hours.
If you’re hungry at bedtime

For some people, a light snack before bed can help promote sleep. When you pair tryptophan–containing foods with carbohydrates, it may help calm the brain and allow you to sleep better. For others, eating before bed can lead to indigestion and make sleeping more difficult. Experiment with your food habits to determine your optimum evening meals and snacks. If you need a bedtime snack, try:
A small bowl of whole–grain, low–sugar cereal
Granola with low–fat milk or yogurt
A banana (not sugary fruits)

You’ll also sleep more deeply if you exercise regularly. As little as twenty to thirty minutes of daily activity helps. And you don’t need to do all thirty minutes in one session. You can break it up into five minutes here, ten minutes there, and still get the benefits. Try a brisk walk, a bicycle ride, or even gardening or housework. Serious exercise, even small amounts, must be done before 6 PM.

Some people prefer to schedule exercise in the morning or early afternoon as exercising too late in the day can stimulate the body, raising its temperature.

Tip 5: Get anxiety and stress in check

Do you find yourself unable to sleep or waking up night after night? Residual stress, worry, and anger from your day can make it very difficult to sleep well. When you wake up or can’t get to sleep, take note of what seems to be the recurring theme. That will help you figure out what you need to do to get your stress and anger under control during the day:

If you can’t stop yourself from worrying, especially about things outside your control, you need to learn how to manage your thoughts. When trying to go to sleep it is essential not to think about work, money, your family’s problems or other stressful subjects. These are very detrimental to sleep. Do not think about exciting subjects (a vacation, your favorite hobbies, etc.). Instead pick something mundane (boring). Pick a subject like weeding you garden, cleaning your car, etc. It will be difficult to stay focused on these boring subjects at first but it will become easier with time and practice.

If the stress of managing work, family, or school is keeping you awake, you need help with stress management. By learning how to manage your time effectively, handle stress in a productive way, and maintain a calm, positive outlook, you’ll be able to sleep better at night.

Relaxation techniques for better sleep
Deep breathing. Close your eyes—and try taking deep, slow breaths—making each breath even deeper than the last.
Progressive muscle relaxation. Starting at your toes, tense all the muscles as tightly as you can, then completely relax. Work your way up from your feet to the top of your head.
Visualizing a peaceful, restful place. Close your eyes and imagine a place or activity that is calming and peaceful for you. Concentrate on how relaxed this place or activity makes you feel.

Tip 6: Ways to get back to sleep

It’s normal to wake briefly during the night. In fact, a good sleeper won’t even remember it. But if you’re waking up during the night and having trouble falling back asleep, the following tips may help.

Stay out of your head. Hard as it may be, try not to stress over the fact that you’re awake or your inability to fall asleep again, because that very stress and anxiety encourages your body to stay awake.

Make relaxation your goal, not sleep. If you are finding it hard to fall back asleep, try a relaxation technique such as visualization (focus your eyes on something in the room), deep breathing, or meditation, which can be done without even getting out of bed. Remind yourself that although they’re not a replacement for sleep, rest and relaxation still help rejuvenate your body.

Stretching. If you wake during the night do NOT fight it or panic. If you can not go to sleep in 10 to 15 minutes, get up, walk 20 or 30 feet, stretch (touch your toes or stretch your arms), walk back to bed and lay back down again. Each time you stretch and lay down your body will produce a small amount of endorphins which help the body relax.

Postpone worrying and brainstorming. If you wake during the night feeling anxious about something, make a brief note of it on paper and postpone worrying about it until the next day when you are fresh and it will be easier to resolve. Similarly, if a brainstorm or great idea is keeping you awake, make a note of it on paper and fall back to sleep knowing you’ll be much more productive and creative after a good night’s rest.


#10 Merete

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Posted 04 July 2017 - 10:14 AM

Thanks FH, lots of good tips! We have an old homestead farm where there is no cell reception, TV or wifi and of course really, really quiet. I find when I go out there I have the best sleep in the world.

#11 LS1978

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Posted 04 July 2017 - 09:03 PM

Yes I take melatonin as well, but I find I can only take it periodically. If I take it too often the effect wears off. So I do the Advil (liquid gels for some reason work way better than solid pills) and then top up with melatonin sometimes. My doctor is always trying to push sleeping pills on me but I am really fed up with being dependent on drugs and not knowing what is a side effect and what is really "me". I also should have mentioned, get some arthritis cream, there are various brands that are supposed to relieve joint pain. I rub that on the soles of my feet at it takes the edge off as well. An epsom salt bath (or just foot bath) is either soothing or excruciating, it can send the pain right off the scale but then sometimes it is very nice.
My pain actually started as chest (wall) pain, so I had all kinds of chest/ heart work-up (everything is fine!) and then the hands/ arms started to act up before it moved into my feet/ legs. So if you get similar pains elsewhere, don't panic! But I really really hope this will settle down for both of us. I am staying on 30 mgs for a while just to get things to level off. At least getting out of the brain fog and start to feel like I can think again would be nice.
Sending you healing, gentle hugs!

  

 

Thanks, Merete!!  Hugs to you!!


#12 LS1978

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Posted 04 July 2017 - 09:05 PM

Thanks for the info, fishinghat!!


#13 Merete

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Posted 10 July 2017 - 01:05 PM

How are you doing LS? Any improvement at all??

#14 LS1978

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Posted 11 July 2017 - 12:42 AM

How are you doing LS? Any improvement at all??

 

No.  :(   I have it in my hands now as well.

 

I have started on Pristiq.  Hopefully that will help, but not get in the way of a diagnosis.  It is a low dose.  Maybe I can stay on the low dose until I get a diagnosis.

 

I am having so much nausea, but also food cravings.  And headaches.  And I feel bloated.  I hope this goes away soon.  I feel pretty awful.


#15 gail

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    5 months on cymbalta, scary side effects, to get help and to return the favor if I can.

Posted 11 July 2017 - 05:56 AM

Hi LS,

Pristiq should help smooth the transition. I am sorry that I have not replied to you earlier. With the surgery, invasive one, I'm pretty out of it at the moment.

Many have waited 7 and more month for relief, you are not alone LS. Enjoy your favorite comforting food while you wait it out. We are here for you anytime you need to vent or ask questions.xx

#16 LS1978

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Posted 11 July 2017 - 06:09 AM

Hi LS,

Pristiq should help smooth the transition. I am sorry that I have not replied to you earlier. With the surgery, invasive one, I'm pretty out of it at the moment.

Many have waited 7 and more month for relief, you are not alone LS. Enjoy your favorite comforting food while you wait it out. We are here for you anytime you need to vent or ask questions.xx

 

Thanks, Gail!!  Don't worry about not replying earlier; I hope you are on the mend!!   :hug:   


#17 StarfighterPilot

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Posted 25 July 2017 - 06:47 AM

I had tingling in my limbs and it turned out I was B12 deficient. Got a B12 shot and it all went away.



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